Ehlers-Danlos syndrome: Living with a genetic rarity

Imagine not being able to pick up a pencil without your fingers hurting. Sending a letter, doing a crossword puzzle, these are just a few of the simple tasks that trigger pain in your joints on a regular basis. This can be a reality people with Ehlers-Danlos syndrome face every day. Except that this pain often is felt from head to … Read More

Study: Falls more common among older adults with pain

Recurrent falls were more than twice as common in elderly people suffering from pain than those who were not, according to the results of a recent study. The article, published in the October issue of the Journal of the American Geriatrics Society, found that 19.5 percent of adults 65 and older who reported bothersome pain in the last month also … Read More

TCAPP and Genelex: Partners in battling pediatric pain

It’s tragic when a young life is haunted by the specter of a disease that causes chronic pain. Such afflictions affect child and family both, making the availability of caregiver resources all the more vital. Since 2011, The Coalition Against Pediatric Pain (TCAPP) has been supporting families of children affected by chronic pain from rare diseases and has brought many … Read More

Participating in life again: A patient story of pediatric pain

  Barbara Granoff, Founding Member of The Coalition Against Pediatric Pain (TCAPP), says her 15-year-old daughter’s life was changed by the DNA drug sensitivity testing Genelex offers. Shira is living with Ehlers Danlos Syndrome as well as dysautonomia, gastroparesis, Mast Cell Activation Disorder and more. “The amount of medications we tried in hopes of controlling the pain is mind boggling,” mother … Read More

Chronic pain patients’ pocketbooks feel pinch of major drug-drug interactions

Chronic pain patients already have enough to worry about from adverse drug events, but a new study highlights a possibly overlooked concern – their costs. According to a recent study published by Pergolizzi et al. in the May 2014 article in the Journal of Managed Care & Specialty Pharmacy, already vulnerable chronic pain patients could end up paying 22 percent more … Read More