It’s tragic when a young life is haunted by the specter of a disease that causes chronic pain. Such afflictions affect child and family both, making the availability of caregiver resources all the more vital. Since 2011, The Coalition Against Pediatric Pain (TCAPP) has been supporting families of children affected by chronic pain from rare diseases and has brought many … Read More
Participating in life again: A patient story of pediatric pain
Barbara Granoff, Founding Member of The Coalition Against Pediatric Pain (TCAPP), says her 15-year-old daughter’s life was changed by the DNA drug sensitivity testing Genelex offers. Shira is living with Ehlers Danlos Syndrome as well as dysautonomia, gastroparesis, Mast Cell Activation Disorder and more. “The amount of medications we tried in hopes of controlling the pain is mind boggling,” mother … Read More